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Discharge Instructions for Hodgkin Lymphoma

You have been diagnosed with Hodgkin lymphoma. This disease is one of a group of cancers called lymphomas. Lymphoma is a general term for cancers that form in your body’s lymphatic system. The lymphatic system helps you fight disease and infection. This system goes to every part of your body. This means that Hodgkin lymphoma can start in many different places. Treatment for Hodgkin lymphoma may include chemotherapy, radiation therapy, immunotherapy, and in some cases a stem cell transplant. Here’s what you need to know about caring for yourself during and after treatment.  

General guidelines

Be sure to follow any specific instructions from your healthcare provider. Make sure you:

  • Take all medicines as instructed.

  • Understand what you can and can’t do.

  • Balance rest with activity. Take naps during the day, if you are tired. But try to move around and walk as much as possible.

  • Keep your follow-up appointments.

  • Call your healthcare provider if you have any questions or are concerned about any symptoms.

Preventing and treating mouth sores

Many people get mouth sores during chemotherapy. Mouth sores also can happen if you get radiation therapy to your head and neck. Here’s what you can do to help prevent them:

  • Brush your teeth with a soft-bristle toothbrush after every meal. If your gums bleed while brushing, try other products to clean your teeth and gums.

  • Don't eat foods that are acidic, spicy, salty, coarse, or dry.

  • Don’t use dental floss if you are at greater risk of bleeding. This may be the case if your provider tells you that you have a low blood platelet count.

  • Use any mouthwashes or rinses as instructed.

  • If you can’t brush your teeth or use mouthwash, talk with your healthcare provider about other ways to keep your mouth clean.

  • Check your mouth and tongue for white patches. This is a sign of fungal infection, a common side effect of chemotherapy. Be sure to tell your healthcare provider. He or she may prescribe medicine that can help.

Managing other side effects

  • Let your healthcare provider know if you get a sore throat. It may mean you have an infection. Your provider may prescribe medicine.

  • You may develop minor burns from radiation treatment. Let your healthcare provider know. There are creams to help lessen mild pain, improve healing, and protect your skin.

  • Bathe or shower regularly to keep clean. During treatment, your body can’t fight infections very well.

  • Use soap or shower gel with moisturizers. Use lotion throughout the day. Treatment can make your skin dry.

You may have an upset stomach or vomiting during treatment. You may lose your appetite. Let your provider know. He or she may prescribe medicines that can help. Try to:

  • Eat smaller amounts of food throughout the day.

  • Include some of your favorite foods in your diet.

  • Make sure you have water and other healthy drinks.

  • Try soft, plain foods. These include pudding, gelatin, ice cream, sherbet, yogurt, or milkshakes.

  • Make sure you cook all food well and store all food safely. This helps to prevent food infection.

Follow-up

  • Make follow-up appointments as directed by your healthcare team.

  • Stay up-to-date on all flu shots and vaccines. Check with your provider before getting any vaccines. Some vaccines are not safe to have while in cancer treatment.

  • Keep all follow-up appointments. You will need to be watched closely for the rest of your life.

 

When to call your healthcare provider

Call your healthcare provider right away if you have any of the following symptoms:

  • Fever of 100.4°F (38°C) or higher, or as directed by your healthcare provider

  • Signs of an infection. These include an area with redness, pain, swelling, warmth, or drainage.

  • A cough, or coughing up yellow or green mucus

  • Wheezing or trouble breathing

  • Bleeding

  • Headache, confusion, trouble focusing, or memory loss

  • Feeling dizzy or lightheaded

  • Fast or irregular heartbeat

  • Rash or itchy, raised, red areas on your skin (hives)

  • Yellowish skin or whites of the eyes (jaundice)

  • New lumps under your arms, on or near your neck, or on or near your groin

Call 911

Call 911 if you have:

  • Heavy bleeding

  • Trouble breathing, cough, and chest pain 

© 2000-2017 The StayWell Company, LLC. 800 Township Line Road, Yardley, PA 19067. All rights reserved. This information is not intended as a substitute for professional medical care. Always follow your healthcare professional's instructions.